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Click here

for an edition of the Indiana Newsletter

 

Publications that can be downloaded and printed

HDSA Publications for download

A Physician’s Guide to the Management of Huntington’s Disease, 2nd Edition

Understanding Behaviour in Huntington’s Disease

A Caregiver’s Handbook for Advanced-Stage Huntington’s Disease

Fast Facts about HD

Family Series Brochures from HDSA:

Huntington’s Disease

Genetic Testing

Physical Therapy and Occupational Therapy

Speech and Swallowing Difficulties

Nutrition

Certified Nursing Assistants  FIRST SHIFT

with a person who has Huntington's Disease

Facing Huntington’s Disease; A Guide for Families

Juvenile Huntington’s Disease; A Resource for Families, Health Professionals, and Caregivers

The Juvenile Huntington’s Disease Handbook: A Guide for Physicians, Neurologists, and Other Professionals

 

Web sites of possible interest:

Center of Excellence at Indiana University

Huntington's Disease Society of America

Huntington’s Disease National Youth Alliance

WeAreHD.org

CureHD  

Stanford HOPES!

Indiana Drug Assistance Programs

Medicare & You 2008 Handbook

Medicare Part D Information

Indiana Area Agencies on Aging

Assistive Technology

Information and forms for Advanced Directives 

National Family Caregiver Support Program

Jean Miller’s Site of VERY Useful Information

Social Security Administration

Huntington’s Disease Advocacy Center

Family Caregiver Alliance 

Hereditary Disease Foundation

Information from NIH on Huntington’s Disease

Brain Basics of Huntington’s Disease

Brain and DNA  Bank Information

Federally Subsidized Apartment List

Nursing Home Information for Indiana

Health Insurance Laws and Information

A Consumer’s Guide to Getting and

Keeping Health Insurance in Indiana

 

MED Works Insurance Program

Home and Community Medicaid Waiver Information

Medicaid Select Information

Medicaid Spend-Down Information

Medicaid Waiver for the Disabled

Medicaid Assisted Living Waiver

Medicaid Disability Information

Health Insurance Premium Payment Program (HIPP)

Indiana Comprehensive Health Insurance (ICHIA)

Information on COBRA Insurance

Centers for Medicare & Medicaid Services

IN Health Connect

The most famous lumberjack at risk for HD

State of Indiana FSSA site for People with Disabilities

NPR interview With Nancy Wexler

Information About Nancy Wexler

 

A Great Book to Buy

 A Great book for Children to understand Huntington’s Disease

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Check out local companies that have donated to our chapter:

Greenfield Mills, New Rinkel Flour

Flour Products by the Bag

Click Here for information about the Old Mill Festival on August 16, 2008

 

 

The Wellness Space - Jennifer